What its like to be an xxy kid

What its like to be a XXY kid

I am writing this from a mothers perspective, my son Noah is aged 5 and is a xxy kid. When Noah was 2 weeks old we nearly lost him. His tiny wee body was starting to shut down. He was exhausted, and as I held his wee hand, I prayed and begged for him to …

A Real Life Klinefelter Diagnosis

My name is Stefan Schwarz.  I have Klinefelter Syndrome, XY/XXY mosaic and found out in February 1996 at the age of 25. Throughout my life before my Klinefelter diagnosis, my parents took me to many medical professionals to determine what my issues were.  They knew that I had learning, social and some anger and behavioral …

26 year old Matthew

My son Matthew is 26 years old and was diagnosed with Klinefelter syndrome when he was 14 years old.  I credit his pediatrician who thought that his enlarged breast tissue was something more than just puberty.  He sent us off to CHOP (Children’s Hospital of Philadelphia) where we received his diagnosis.  At the time, there …

high school with xxy

High School with XXY

How did I manage High school with xxy? These are personal Notes From my experience with high school with xxy and how you can help yourself or your child. Youtube Video on High School The challenge was adjusting to a new learning environment since high school had so many more students then middle school. Switching classes …

Klinefelter Confidence

Klinefelter Confidence

What is Klinefelter confidence you might be asking yourself? Did you know that most men with Klinefelter syndrome fall under the lack of Klinefelter confidence and believing in themselves?   Some say we are genetically pre disposed to lack of confidence.  Whatever the reason may be here are some notes to help you help yourself to …

Working together

Working together for the future

We must start working together for a brighter future. Since I am very active on facebook I wanted to take some of the posts that I have written and share with the rest of the world who do not have the opportunity to view them on facebook.  These are posts that have given me an …

Making A difference

Making A Difference

Making a difference For those of you who have been wondering how you can be making a difference in other peoples lives who have x and y variations, now you can.  I believe that if you share your story of growing up with Klinefelter syndrome or an x and y variation it will help others …

klinefelter syndrome Sean DiSandro

15 year old Sean DiSandro

A story about 15 year old Sean DiSandro Living with XXY. On July 29, 2002 I gave birth to my second child, a baby boy. He was identical in weight and length to my first child three years prior, a daughter. They even looked so similar at birth they could have been twins. However, early …

diagnosed with Klinefelter syndrome

Diagnosed with Klinefelter syndrome

A message to men who just found out they are diagnosed with Klinefelter Syndrome, 47xxy and any other x and y variation. I do not know the feeling as a found out at the age of 9 but this message was written for a man who messaged me on instagram. He had told me this …

xxy conference livingwithxxy

Life changing XXY conference for Klinefelter syndrome

Looking back on the last year of my life. In June of 2017 I decided to go to my first xxy conference  put on by the non profit AXYS. This happens once every two years. The conference is about x and y variations including what I was born with which happens to be klinefelter syndrome …