here's what matters
The Faces of Klinefelter Syndrome
These are the Real People who are helping us make a difference.
Xxy Employment
Extraordinary people around the world with not just any ordinary job.
Testosterone Replacement Therapy
All of the current information on different options for treatment.
Our Positive Traits
An amazing set of traits being born with XXY. These things are defiantly worth smiling about.
Clinical Trials
Sign up for clinical trials with X & Y variations to help make a difference.
Helping You
We know you have so many questions. This is our community working together to answer them for you.
Klinefelter syndrome Athletes
Our community shares what types of sports they play and enjoy.
Education after High School
School can be extremely tough for many. Here are their accomplishments after high school.
Valuable resources
Here is a list of nonprofits, clinics, hospitals and other helpful resources.
Our Youtube Channel
Come learn more about living with Klinefelter syndrome. Real interviews with parents, kids, and adults.
Our Community Blog
Read the inspiring stories of our community members.
Parents guide to 47 XXY
Parents guide to 47 XXY was written by a mother who found out prenatally. This guide is extremely helpful.
Did you know
Klinefelter syndrome is a chromosomal variation in boys and men that can affect physical and intellectual development. Its signs and symptoms vary among affected individuals. In some cases, the features of the condition are so mild that the condition is not diagnosed until puberty or adulthood, and researchers believe that some affected men and boys are never diagnosed. Klinefelter syndrome affects 1 in 500 to 1,000 newborn boys. It is among the most common sex chromosome disorders. that they present with a range spectrum one size fits all.
15 Oct
Klinefelter syndrome: many men have an extra X chromosome – but it is rarely diagnosed
The genetic condition is one of the most common in the UK and maybe a ...
08 Oct
My Son’s Klinefelter Story
English translation from Spanish I wanted to have an amniocentesis. Although you do it by ...
01 Oct
Mexican Mother’s 47 XXY Story
English translation from Spanish. On June 30, 2008, they called us on the phone to ...
24 Sep
Spanish Mother’s 47 XXY Story
English translation from Spanish. It has been many years since I wrote this message in ...
30 Aug
Testosterone Replacement Therapy
In January of 2018 I was invited to speak in front of the FDA in ...
30 Jul
47 XXY Syndrome Awareness
To my surprise, I found out I was pregnant at 45. My husband & I ...
What they say
I was lucky to find living with xxy. It has helped me understand how bright my son’s future can be. There are not many places on the web that shows you what real guys living with xxy are like. I have been lucky to meet Ryan and many other great guys through this living with xxy works. They have shown me the struggle is real but life can be great.
“Ryan is a remarkable young man and a true gift to the XY Variation community. Not only does he bring hope and inspiration to parents who have recently learned of their child’s diagnosis, but he also serves as a role model to the kids who are trying to understand their symptoms and find someone they can relate to. He already has and will continue to have an incredibly positive, life-changing impact on so many lives.
Despite seeing multiple specialists and making sure my son received the best treatment possible, there was still so much about XXY that we didn't know. Ryan and his Living With XXY project have provided my husband and I with a candid, informative, first-hand account of what the future may hold for our son. It has empowered us and brought so much positivity into a situation that at times we felt overwhelmed.
I put in XXY into Youtube and there you were, it was Amazing! I was impressed and amazed by Ryan’s positive yet realistic outlook on Klinefelter's. I asked my son to watch with me and his eyes lit up maybe for the first time, he said: “he has the same thing I do” . I can feel it in my bones that he will be the one to educate the world about this condition. Thank you for being you.
Livingwithxxy is an excellent resource with groundbreaking information to help individuals who are XXY or have Klinefelter Syndrome. This site is constantly updating and providing current information. The site owner has the condition and makes himself readily available to speak with individuals and families. Bookmark this outstanding website and visit it often!
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