What its like to be an xxy kid

What its like to be a XXY kid

I am writing this from a mothers perspective, my son Noah is aged 5 and is a xxy kid. When Noah was 2 weeks old we nearly lost him. His tiny wee body was starting to shut down. He was exhausted, and as I held his wee hand, I prayed and begged for him to …

A Real Life Klinefelter Diagnosis

My name is Stefan Schwarz.  I have Klinefelter Syndrome, XY/XXY mosaic and found out in February 1996 at the age of 25. Throughout my life before my Klinefelter diagnosis, my parents took me to many medical professionals to determine what my issues were.  They knew that I had learning, social and some anger and behavioral …

26 year old Matthew

My son Matthew is 26 years old and was diagnosed with Klinefelter syndrome when he was 14 years old.  I credit his pediatrician who thought that his enlarged breast tissue was something more than just puberty.  He sent us off to CHOP (Children’s Hospital of Philadelphia) where we received his diagnosis.  At the time, there …

Making A difference

Making A Difference

Making a difference For those of you who have been wondering how you can be making a difference in other peoples lives who have x and y variations, now you can.  I believe that if you share your story of growing up with Klinefelter syndrome or an x and y variation it will help others …

klinefelter syndrome Sean DiSandro

15 year old Sean DiSandro

A story about 15 year old Sean DiSandro Living with XXY. On July 29, 2002 I gave birth to my second child, a baby boy. He was identical in weight and length to my first child three years prior, a daughter. They even looked so similar at birth they could have been twins. However, early …

Klinefelter Community living with xxy xxy Klinefelter syndrome

Building a Klinefelter Community – article by AXYS

Building a stronger Klinefelter Community starts with you. Thank you for taking the time to visit my website.  This article was written about me by a non profit for x and y variations called AXYS.  This is just the begining of spreading awareness and helping to foster a positive Klinefelter community all over the world. …