XXY Adult Matthew

XXY Adult Mathew
xxy adult, Klinefelter, Klinefelter syndrome, xxy, 47xxy
Grill Master
My son Matthew is 26 years old and was diagnosed with Klinefelter syndrome when he was 14 years old.  I credit his pediatrician who thought that his enlarged breast tissue was something more than just puberty.  He sent us off to CHOP (Children’s Hospital of Philadelphia) where we received his diagnosis.  At the time, there was very little information out there and the Internet, as we know it today, did not exist.  I researched as best I could, and explained what I had learned to Matthew.  I did this so he understood that Klinefelter syndrome was not anything bad. XXY Adult Matthew started Testosterone Replacement Therapy.Finding the right medium was challenging though.  He tried patches, cream and then finally injections.  Matthew continues taking the injections to this day. It broke my heart to see Matthew being teased and bullied.  At the age of 16 I took Matthew to see a doctor at a Comprehensive Breast Care facility. We made the decision collectively to perform a double mastectomy for him to get rid of breast tissue.  It didn’t change everything, but it sure did change a lot for Matthew.  Matthew returned to school with a new found confidence.  He tried college, but without special accommodations, he left after two semesters.  Matthew has been working for FedEx for the last 6 years.  He has good pay, excellent benefits and the opportunity for advancement. At a Fall Mid Atlantic Support Group meeting, held at Nemours DuPont Hospital for Children in Delaware. We were told about Ryan Bregante and his positive messages on social media about Living with XXY. “I found Ryan on Instagram during the drive home and he has inspired me in many ways” -Matthew.   We went back to the Spring Support Group meeting so that Matthew could meet Ryan in person.  The two have quickly become friends and stay in contact with one another.
xxy adult, Klinefelter, Klinefelter syndrome, xxy, 47xxy
Helping out with his Dad.
In Matthew’s own words, “ I’d like to tell you about my life’s two greatest accomplishments.  First is flying and traveling alone.  I had planned it for a while but never had the courage to do it before, but with the support from my mom and Ryan, I did it!  I went to Nashville, TN for a long weekend.  Once I got to my hotel room I had anxiety and felt home sick but with the support and encouragement from my mom and Ryan, I left my room and went on the most amazing adventure!  I got to see and do everything I had wanted to do. My second accomplishment is my weight loss journey.  It’s been a hard struggle for me to loose weight, but I am now down over 20 pounds.  I cut out a lot of sugar and eat less carbs.  It helps having support from family and friends as well as an awesome trainer who pushes me to go beyond what I think I can do.  I feel better about myself when I work out and I plan on keeping up with it and also plan on taking another trip back to Nashville to see even more things there, now that I know I can do it.  I hope my story inspires anyone with anxiety to know anything we set our minds to is possible.” Written by XXY Adult Matthew and his Mother. Children’s Hospital of Philadelphia

11 thoughts on “XXY Adult Matthew

  1. Ryan and Matthew,

    Eight years ago I wrote a book on the contemporary debates on sexual orientation. Now eight years later I am writing a follow up piece that looks more broadly at the non heterosexual populations in our culture, including intersexual individuals. I have had to do a fair amount of research on the topic because I didn’t know much about the topic. While I did have a friend who is intersex, but he really didn’t share much, which is of course his right.

    In doing my homework I spent time with the literature on the topic. But it wasn’t until I hit YouTube that I really began to understand the personal stories. Last night I was watching a documentary on Klinefelter Syndrome. It provided me with an insight into the struggles of three kind and empathetic individuals. This morning I watched three installments from Ryan’s work and I found an inspirational look at where you guys are.

    Thanks for helping me to understand the full panorama.


  2. Matthew
    Thank you for sharing your story and I hope you have many more travel adventures. So great to hear your stories and that you have great support around you to help you achieve everything you set your mind to.

  3. Matthew .. if and when you get back to Nashville, just let me know via FB messager. We are only 100 miles south and we would love to me you. My XXY son is almost 18.

    Beverly Richey ?

  4. Hi,
    Does anyone the costs associated with trying to conceive with xxy? Thank you for your blog. My 33 year old brother was just diagnosed after many years of trying to have a baby with his wife.

    1. Hi,

      Yes! My husband and I are on this boat now. We have been quoted over $30k for a joint Micro Tese and ICAI IVF (retrieval of sperm and eggs would be done at the same time!).

      My insurance covers nada, but my husbands covers $15k (thank God). We are unfortunately still trying to figure out how we will afford it. Anyways, I am happy to recommend doctors in the NYC area!

      Also I want to add that in my opinion this may be the best procedure- if a micro tese is done only and Soren is found and frozen a lot if not all of the sperm may be lost that way so it sounds like the joint procedure is the best option right now.

      We are scheduled for end of Feb for now!

      1. Hi Sabrina,

        I’m curious to know how the procedure went (micro-TESE), if you don’t mind sharing? My partner and I are now considering that procedure as well with IVF ICSI.


  5. Thank you for sharing your story about your son Matthew, I can relate to him because I have XXY and had the same problem with enlarged breast when I was in Highschool. It was so embarrassing to be in a gym class and have to strip naked in front of the other guys. They teased me and called me names. In 1976 I was 16 years old. I went-in the hospital for Breast reduction via liposuction. It was a traumatic experience but after a month or so I had a flat chest and had more self confidence. From that point on I got shots of testosterone. For years I got a shot every 3 weeks. Then when patches came out in the mid 1990’s I did that but it was very itchy. I’ve been doing Androgel for 10 years and now the generic form. I am gay and have a husband. We have been together 29 years. We have a successful business in Provincetown MA.

    1. I was diagnosed when I was 23. I always felt different and was attracted to men at an early age, some say your not born that way, but why did I have these feeling as early age of 7.
      Growing up did you have these feelings?
      I’m 66 now and have struggled with this many times.
      Suicidal thoughts were always present but I’m still here. I guess you could say I just kept plugging away until this life is over.

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