Looking back on the last year of my life. In June of 2017 I decided to go to my first XXY conference put on by the non profit AXYS. This happens once every two years. The conference is about x and y variations including what I was born with which happens to be Klinefelter syndrome. I had known about these conferences since I was younger. I never had any interest in meeting others with my condition. I think this was just because I was so busy with life trying to keep a job, friends, social life, school, family, girlfriends through the years that I never felt like there was enough time.
Being 31 years old at the time, my mom came up to me and asked me if I wanted to go in April of 2017. She said that I would learn something and I might find a way to help a few people. Little did I know that this conference would be life changing for me. I said yes and went with a purely open-minded mentality, no judgment of who or what the XXY conference was about.
The XXY conference location was in Denver, Colorado. I had previously spent 5 years of my life living up in the mountains, and I always try and come back to Colorado once a year to visit my friends who still live in this beautiful state. The conference was spread out over 3 days and was geared more to parents with young kids although there happened to be about 25 adults over the age of 16. It’s something I highly recommend looking into, saving money and making a serious effort to go.
After the XXY conference was over, I walked away with some new life long friends, a ton of ideas and so many unanswered questions. So I started teaching myself more about my XXY and Klinefelter syndrome than ever before. (I feel like I’m getting a medical degree) Most of my life I just did what my doctor said, did blood work when I needed to and lived life the way I always did. I have this fire in me wanting to know more, wanting to meet more people and understand why it’s talked about so negativity. Some of my questions were “why has there never been a study about what we are good at”. “Why are doctors telling pregnant mothers””your son won’t have a chance at life””. “Why is there no positive information about this”
In September I made my first ever YouTube video and now I working on a series of videos to bring more light to our community. Hopefully inspiring others to do the same and open up about the positive side of life, turning the corner on the negativity and pessimistic views.
Today’s the last day of 2017 and in 2018 I have decided to open a new chapter with a brand new website dedicated to purely positive information and about my life with xxy and others. I will post when it’s launched. XXY has now become my main focus for the next 6 months. I want to help build a community where people can meet and talk with others in their city or all over the world, keep raising awareness and reaching for the stars to show people that we are not just “hidden in plain sight” but that we are amazing and creative people.
We XXY are the ones who have to make the change happen, standing up and educating those around us for a brighter future and a positive one.
Help Build a positive community and read my story Here
Also check out my YouTube Here